Posted by DB on April 08, 1999 at 13:27:38:
Can I vent here as a family member that has to watch the suffering. I have a hard time watching my husband suffer through somuch pain. It isn't that I don't love him with all my heart. I just hate to see him suffer for days on end with these nasty beasts. I wonder sometimes if this is the ordeal God gave him to suffer through. Ya know God doesn't give you anyhting you can't handle, right? Well this is one thing that tests the strentgh we have. Him with the pain and me just having to watch knowing there is nothing I can do to help. I am a strong person but I can't stand the sitting and watching as the person I love just suffers and suffers. And the doctors with the try this medicine and try that medicine. What.. is he a guinnea pig? I just wish that there is someone out there some where that can say here this works. We have been going through this for 5 years now. I know that isn't long compared to some of the people that come in here... for us with the former lifestyle that we could out and go camping or jsut for a drive or whatever we wanted can't do that anymore because the beast usually raises his ugly head and we have to head back home. For me I just watch the suffering and feel weaker and weaker because I know there is nothing I can do to alleviate the pain he has to go through. I am a mom and I know giving my child tylenol and a kiss will help them BUT there is nothing I can do for my soulmate. Thank you very much for letting me have my say. I know you all suffer with the pain of these things but so do the family members that have to watch and know nothing they can do will help. I feel like I have them too. Although I don't feel the pain in my head it is in my heart. Again thanks for letting me talk.