Posted by drummer on May 27, 1999 at 18:51:06:
In Reply to: US; Guys and Gals posted by drummer on May 27, 1999 at 18:49:36:
Hello everyone! I need your help! I need all of you to pretend that I am an idiot! Most of you won’t have to try too hard! I want you to also pretend that WE can make a blank piece of paper SCREAM!
Let me explain. With your help, I want to take a blank piece of paper and place words on it. I want this piece of paper to show that a Cluster Headache is not a headache. I want to show that cluster attacks and the pain they give is life debilitating. The words Cancer, Brain Hemorrhage and Amputation speak volumes. Headache says to me, “take two aspirin and lay down” WE all KNOW that this torture is not a fucking headache!
I want you guys to pretend that I haven’t had chronic cluster headaches for the past 15 years. I want you to pretend that I am the idiot that you work with. I want you to pretend that I am the idiot that lives next door to you. I want you to pretend that I am an idiot with a degree in Neurology. I want you to pretend that I have never heard of the phrase, “Cluster Headaches”. I want you to pretend that I am an idiot that works at the FDA and that I have decided that Oxygen is not an effective treatment for Cluster Headaches.
OK. Now that you are picturing me as an idiot in your mind; I want you to answer some questions that I have. Ready?
Question 1) What are Cluster Headaches?
Question 2) What is your personal experience with Cluster Headaches?
Question 3) What do you say to your doctor to help him help you with Cluster Headaches?
Question 4) What affects have Cluster Headaches had on your life?
Pick a question and answer it. Pick all of them if you want. Post your answers to the board. Better yet, E-mail your answers to me. Here’s my E-mail address, (davedrum@eznet.net). You can begin your E-mail to me like this: (Dear Idiot,). I anticipate that they will contain all kinds of different emotions. (Some may even contain the “F” word). That is fine with me. I love the “F” word.
I hope to receive 503 E-mails. (That’s how many people have placed their names on “Where Do We Live”). I will take the 503 E-mails, or “voices”, so to speak, and make them one really loud voice on a piece of paper. I can only do this with your help. This piece of paper will be OURS. You will be able to take this piece of paper and hand it to anyone you wish. I’m going to hand my copy to my doctor. I am going to also send a copy to the Federal Drug Administration. (I’m really upset that they won’t approve Oxygen for me and my Cluster Headaches). Again, I really want to make this piece of paper SCREAM. Thank You in advance for your time.