Posted by drummer on May 27, 1999 at 18:49:36:
Hello Ladies and Gentlemen. Let’s talk O.U.C.H. Organization for Understanding Cluster Headaches. I love the name. Given to us by lc bob, I believe. Bobby Gilliam, the new guy, with lots of time on his hands and Barbara D. have been working extremely hard to bring this organization together. DJ remains the web master. If it wasn’t for this web-site, I would probably still feel totally alone. I hope everyone reading this feels less alone, like me. DJ, I hold a wine glass in my hand (filled with grape juice of course) with my arm extended high. “CHEERS”! “THANK YOU”!
Barbara D. continues working at the legalities of giving birth to a new organization. Bobby Gilliam has connections to help this organization get to its’ feet. Bobby will see to it that this organization takes the appropriate steps to survive. You probably are asking, “What the hell is this drummer guy doing”? I am asking myself the same question.
I will update you on the progress of O.U.C.H. As of now O.U.C.H remains in the womb. The HEART is US. Yes US! The key to O.U.C.H is input from you. The early stages of O.U.C.H will need some marketing expertise. lc bob, Jack Boyd? Can we sell this organization? We all know the frustration of looking into vacant eyes when trying to describe cluster headaches to a non-sufferer. This organization that is US has to find a way to fill the eyes with understanding. Margi, I need graphics. Linda B., I need your honest, sincere heartfelt words. Bob P., Bob Kipple, Elaine, and everyone reading this I need all your help.
I am an incredibly cynical human being. I truly believed that there was no hope for US. I believed that I would simply suffer this torture in my head and visit DJ’s web-site 12 times a day for the rest of my life. Now Bobby Gilliam comes along and gives me hope. Hope that maybe WE can spread the understanding of cluster headaches to our doctors, FDA, University hospitals, Legal Aid, counseling, SSD. The list goes on.
Let’s Rock-n-Roll!……..