Posted by Linda B on May 27, 1999 at 20:27:35:
In Reply to: I need your help! posted by drummer on May 27, 1999 at 18:51:06:
drummer I will never be able to see you as an idiot know matter how many time`s you say it.
I can vision you nuked fighting with you 02 tank.
I`ll alway`s laugh about that one. ha ha ha. I`m lauging now.
Ok let`s see another word for Cluster Headache.
Hmmm, Something that will have people grabing their own head`s in pain. "Sceaming Death Ray" No that`s not it. " Hell On Earth' Nope not that one either. " War In My Head." Nooo. This is harder than it look`s." Acute Vasucular Brain Disease" I`m getting there. I kinda like that one. Acute & Diease alway`s stand`s out. Think we can do better. drummer this is hard!! What I really want to call it would not be able to repeat anywhere.
Let`s try #2 This brain disorder has made my personal life and the live`s of the people around me not a life you would even let a dog live. If it was a dog you would not let it suffer like I have. You would call it unhumane. You would have me put to sleep. But I`m not a dog I`m a human. So in being so I am sentence a life of living hell. Not by anything I have done wrong in my life, but by people that can do something about it but choose not to.
Granted you have came along way in 50 year`s.
If the doctor`s, scientist an drug lab`s would just push the envelope just a little futher then we might just find the cure that we all suffer from.
It`s not that much to ask from someone that did nothing wrong. So many more that are just like me.
I`m one of the lucky one`s. I have a doctor that really care`s what he is doing. He see`s my pain an he want`s it (sometime`s I all most think worse than I) to stop.
The effect`s that it has on my life is disabeling.
I can not be the mother I want to be. I could not be the wife I wanted to be. I could have been so much more if it wasnt for head attack`s. I had dream`s of going back to collage. I had dream`s of a better life for my children. See that`s just it I HAD. I dont have it because of the daily pain I try to hide so well. I was made to believe it`s all in my head. Well DUHHHH.
drummer you said there was 503 just on the "Where do you live list." I hate to even imagine what the real total is. Still I would like to find out.
I know this is not what you was asking.
Untill I set down and tryed to answer them. I didnt realize how hard your question`s where.
All I know is this disease has taken so much from me. More than I would ever be able to say or write. It has taken me. I feel like I`m not really human I`m just this disease that know one want`s to deal with. So they sweep us under the rug, like where dirt. I almost think that`s where they want us. They dont see in the eye of the disease`s we live an fight daily. We at least try to make a life. We learn way`s to deal with what we have. Cause they have given us know choose. Thank god we have each other.
Sorry drummer not much help.
Hug`s Linda