Posted by mike (216.117.94.95) on September 08, 2001 at 03:29:50:
I have just came out of a 3 year remission with clusters and this time around is just plain and pure hell. My neuro placed me on pure oxygen at full flow, and to tell you the truth the oxygen makes them worse. So with the mask strapped on I experience utter hell with the tears and panting. This period is lasting me almost 3 weeks, and let me tell you I miss my life that I left behind me. I just have those days of giving it up, but my family needs me and I need them. Tried all the meds, Imitrex, maxalt, feuronal, tylox, elavil, and many more. Also, my neuro has me on 480 mgs of verapamil now, I have been on 240 mgs for almost 7 years. Has anyone out there tried any alternative therapies such as accupuncture, or meditation? Know one that has never experienced this madness understands and frankly could give a rats ass either. Any tips from anyone would be of most gratitude, thank you