Posted by Brian M on April 21, 1999 at 00:09:02:
In Reply to: Brand new to diagnosis...felt for years posted by Hollie on April 20, 1999 at 22:17:24:
Hollie;
Very sorry to hear it took 8 years to get diagnosed. I just recently joined the family of CH'ers and have done a LOT of research and reading. One of the things I read (which I believe was on the John Hopkins Intelihealth web site at www.intelihealth.com)was that there is a tumor that completely emulates a Cluster Headache. It CAN NOT be detected by a CT! Because of it's location, it can only be detected by an MRI. Granted I am no expert, but the symptoms you list seem far greater than CH's. If I were you I would beg, plead, pray and scream until I got an MRI.
I will look for that information again and post it here.
Until then
Enjoy the free time!
Brian