Posted by Marie (205.188.196.43) on January 16, 2001 at 22:16:53:
I found this website at the end of Oct 2000 when
my brother started his cycle after 2 &1/2 yrs. I think I know more about what he suffers with than he does-I check it every day just about. He got help from his children's pediatrician who renewed meds he had gotton from New York when he was diagnosed with CH.
He now lives in Florida. He should now be ending his cycle but the DR took him off Predisone because he was
gaining a lot of weight (on him it would look good-hes a skinny guy)-that was 2 weeks ag0. I called him tonight to check on his bad cold and got the chilling news from one of his son's (he would not tell me this because he knows I worry),that the CH were full blown back. What's with this he should be ending. Anyway I told him as I did a month ago he will need to see a neurogolist but he does not have the $$. His wife called three of them today and they would not see him unless he has at from $200 to $300 (no credit cards) He does not have this-the $$ for his meds over the last 3 mo plus no health ins has left him in a hole. These Dr's should all die as far as I am concerned, Please advise me of a Dr in Fl who is more compasionte or should I check OUCH, Please Please try to help me help him-I love him so-his son said when he got home from school today he saw his father crying from this god awfull pain. Please help me help my brother and his family.