Posted by Larry R. on March 05, 1999 at 08:48:28:
Hello,
First I'd like to thank DJ for this site. Before I found
this site , I had a lot of trouble finding any information
on CH.
I have suffered from CH for 11 years, with the first seven
going undiagnosed. I usually get a CH between 8 and 9am and it
lasts for about 45 minutes. Finally my doctor figured it out and
tried me on Calan which did ok for a while and then propranolol
which didn't work that well. Then (after switching doctors) I
was put on verapamil which did wonders. I didn't get a CH for
two years! Then it suddenly stopped working. Then nothing worked
for about two months (this was Dec. 1997). Ironically my doctor
decided to put me back on verapamil and it started working again.
I am still on that drug now.
However, over the time I have used this drug I started experiencing
some side effects including fatigue and hair loss. My friends have
noticed my lack of energy since going on verapamil. I am told these
are a side effects of Calcium Channel blockers. Now I will gladly
take these side effects to prevent my CHs, but my doctor wants to
try something different, with less side effects. I am willing to
experiment, but if they come back I don't give a crap about the side
effects of verapamil.
My doctor has decided for me to try Indomethacin. I know this is an
anti-inflamatory drug and I read the info about it on this site, but
is there anyone out there that has used this drug?
Any information is greatly appreciated.
Thanks
Larry R.