Posted by Lenny (209.178.136.26) on December 11, 2000 at 21:03:23:
to all my" cluster brothers and sisters",i have been suffering from this wonderful thing for some time now,ive been to some of the best neou.drs. in the los angeles area with no results,have taken everything with no sucess(except imatrix(injections)for aborting).
Had surgery (sinuatis-probably mispelled)against my cluster dr.advice.Ill first give you a breif history,when i get my cycle they always last 8-9 months at a time,90% of the time they are 10,during a cycle im usually up 80-90%of every night battling them,
mine have no time clock,they just attack me at will and
boy do those bastards hurt(as each and everyone of you know).all these years of dealing with these doctors,you feel like a guiney pig(and im sure we are).
anyways i went to a new GURU (which i knew of about 3-years ago)i figured why go (he's going to make me a guiney pig again with no results).this current cycle was driving me up the wall,so i saw him on 11-15-00,at this time i just finished my third month,with 5-6 to go."each and everyone of my cycles last8-9 months-they have never been more or less".now all of these meds. that he gave me,i have taken before with no sucess,but the combination of these has done me right(my new dr.stressed to me that it is very important to take them at these specific time's for it to work).hey i was thinking the same thing you are"BULLSHIT"this wont work just like nothing else has.since the 15th i have had only 10 of them(yes all 10's-)
1-lithium 300 mg. 9:00 a.m.
1-verapamil 80 mg.9:00 a.m.
...........................................
1-verapamil 80 mg.-1:00 p.m.
...........................................
1-lithium 300 mg.-5:00 p.m.
1-verapamil 80 mg.-5:00 p.m.
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1-verapamil 80 mg.-9:00 p.m.
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1-cafergot-one hour before bed
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now i know alot of you must be thinking,he is just a "newbie",yes i am (as far as this site goes),but not to these cluster's(unfortanattly).prior to taking this comb.of meds.,i was getting the last week 4-5 very powerful a day.I guess i'm so happy,i just want to share it with you guys(no one else understands our pain
-plus i dont talk about it because i know that they are thinking of a regular headache pain).i also hope that all of you,who had no sucess might want to talk to your dr.about this.well i would like to wish each and everyone of you and your families a happy(PFDAN)
HOLIDAY SEASON.
by the way,the dr.who put me on this cocktail (meds),
has done alot,as far as research.(KUDROW)
hey this is like a free office visit(lol)
your cluster bro,
Lenny
this is my ex-wifes e-mail= aantkowski@earthlink.net
please excuse my spelling