Posted by sonya (216.9.206.253) on October 27, 2000 at 12:09:02:
In Reply to: do i sound familiar? posted by nancee on October 26, 2000 at 16:28:38:
hi nancee... you can email me at home if you want.
My parents use to think i was making it up! And give me
to asprins and yell at me! And you know how painful these are.
so... time to get you the right meds. I've been going to a neuro
for about six years now... and have done it all! well... not all.
Everyone has their tricks of trade. Mine is steriod burst... your young
enough to do it... but when your older..it's harder. Then, the Kolonpin
(anti-depressant anti-anxiety drug) works immediately so they are low pain levels.
And my favorite... oxygen tank...need a BIG tank,.... J size... and suck on air
for 10 minutes on 6 liters to 10 liters per minute and it BREAKS the
attack. It may not work the first 5 times.. the trick is to relax with the attacks
while having the oxygen tank on. Lay down... and relax... and then i usually after the
pain breaks... leave the oxygen on low... 2 liters to 4 liters for another 10 minutes...cause
it seems to calm any left over pain .... and keeps other attacks from happening.
This year, was HARDER than past years to get out of attacks. Their is a gal named Melissa
who is your age...and she is my little savior this year. She told me on the start of an
attack... drink immediately two cups of coffee.... (i drink these cold to DOWN THEM)...
and then i suck on my air...and i have much better result. THe steriod burst is hard.
It goes 60 mg for 3 days, then 50 mgs for 3 days...etc). They also put me on prozac cause
they tend to help lesson the attacks so you can live your life. But.. i don't take them year
round. Depression is a problem for me in a major way...this cycle of ch's does it!
So... take it easy... lots of drug choices.. keep us posted, and learn from OUR mistakes!
The other trick... annemerie i think told me this one... i take a warm blow dryer (Not super
hot!) and blow it on my head and it tends to help ease the pain while the ch is going on.
welcome to our family. stay and become part of it. Oh, and join the chats.... sonya
write me personally if you want to!