Posted by LEE HADDOCK (24.31.221.66) on October 12, 2000 at 14:39:52:
In Reply to: Help! Trigeminal Neuralgia posted by Sherry H on August 19, 1999 at 13:01:07:
HI, I HAVE HAD TGN FOR A YEAR NOW. WAS ON TEGRETOL
5 PILLS A DAY UNTIL A MONTH AGO WHEN MY NEURO PUT ME ON TRILEPTAL. IT HELPED ALOT. IT WAS THE FIRST TIME IN A YEAR I DIDN'T HAVE THAT TERRIABLE PAIN ON THE SIDE OF MY HEAD TO MY FACE. I HAD ONLY FOUR BAD DAYS. NOW TODAY HE CHANGES ME AGAIN THIS TIME TO TOPOMAX.I DON'T KNOW ANYTHING ABOUT THIS DRUG AND I AM SCARED TO DEATH.MY NEURO SAID IT CAUSES WEIGHT LOSS AND I WAS WONDERING IF YOU HAD LOSS WEIGHT. I HAVE GAINED ON THE OTHER MEDS SO I HOPE THIS IS TRUE ABOUT THE DRUG AND THAT IT WILL BE AS EFFECTIVE AS THE TILEPTAL WAS. I KNOW YOUR PAIN. I HAVE NEVER HURT THIS BAD IN MY LIFE AND UNTIL I GOT IT I HAD NEVER EVEN HEARD OF THIS DISEASE. I WAS GIVEN AN MRI THAT SHOWED A LESION ON MY BRAIN SO THE DOC THOUGHT MAYBE IT WAS MS BUT ON THE SECOND ONE THE LESION HAD DISAPPEARED SO I GUESS THEY ARE STILL JERKING ME AROUND. HANG IN THERE AND IF ANYONE HAS ANY INFO ON THIS TOPOMAX OR TGN PLEASE EMAIL ME.