Posted by Jayson (206.157.110.215) on October 10, 2000 at 23:55:34:
I have been getting Cluster headache's for almost 12 years now, I initially thought they were Migraines for about 9 years as I had a Doctor that did not understand OR care about it in any way (Just one of those money hungry, greedy, insensative Bastards) that eventually told me that he thought I was faking it and to just "Suck it up and Deal with it". After that I found a Neurologist in Lansing, Mi. that told me for the first time that they were Cluster Headaches. I can no longer afford to see this doctor as I have no Insuarance so for the past 1-2 years I have had to just Suffer. Well, I just got out of the hospital where I was admitted for 8 days and building an enormous medical bill with tests such as an EEG, MRI, and an MRA which of coarse shows no sign of a cure. They just kept giving me Morphine and the Neurologist that attended to me in the Hospital told me that I have the absolute WORST case of Cluster's that he has ever seen in anyone in his medical career. Now that they have released me, they sent me home with the following regiment of pills that I have to take:
Inderal 60mg 3 times daily.
Serzone 100mg 2 " " "
Lithium 300mg 2 " " "
Vicodin ES as needed.
Prednisone
Neurontin 300mg 6 times daily
Elavil 75mg at bedtime
Oxycontin 20mg 2 times a day
Midrin caps as needed
Can anyone please help, relate, or just want to talk? Email or whatever, very lonely and suffering.
Jayson.