Posted by Shari on February 15, 1999 at 08:59:43:
I think I've stumbled into a bunch of experts who can really help us.....you all. I'm the wife of a newly diagnosised "cluster headache" sufferer....Only we think they could be wrong. We, actually I read to him, last night....everything we could absorb in hours from this web site....you all have done a fabulous job, and some of it does not add up to what Steven is suffering with. Tell me.....why can he sleep all night if in fact he has clusters? His headaches are EXACTLY as you described. They come at specific times....every day for 14 days now....Three a day. Dr. already started Imitrex. But even before that he always felt dizzy, out of control...like out of body experiences, he's cold (not sweats like you described), no concentration, can't look at a computer screen-the light hurts (he's wearing sunglasses all the time now...in fact they have "downgraded" him at work (yes, he's in management, and aren't they sympathetic?). It is affecting his entire life...DURING THE DAY...but not at night. Do you think they are wrong? Our entire lives are coming unraveled. I hold him while he cries feeling like he's out of control and there's no end in sight. He dreaded going to work today. Please help us....Please! I feel for each and everyone of you, and all the spouses, too.