Posted by Terry (205.188.192.43) on June 22, 2000 at 20:45:13:
In Reply to: BADNIGHT posted by Paula on June 22, 2000 at 13:04:55:
This is my first time on the board and I'm not feeling as bad when I read just how bad some of you have it.(I won't feel that way tonight though, when it hits)I've had CHs for 30 years, and have been pretty successful in changing medicines every 5 years and finding something that curtails the number of headaches in the cycle. But this year nothing seems to be working. I'm in my 5th week of my normal 6week cycle.I started out with a 10 day pack of Prednisone along with Calin. When I got down to 2 pills a day, the CHs hit. I had them 5 nights in a row for about 3 hours each. Imitrex didn't do much good but took them anyway. Then I got the Doc to get me back on Prednisone. Immediately, I had relief, until I ran out.(10days)The Doc said I couldn't continue to take Prednisone so he gave me Amerge, to take every night before going to sleep. This has helped some but have had 4 real bad CHs in the last 9 nights. Has anyone else had such great relief with Prednisone and were you able to stay on it longer than 20 days? Just to let you know, mine are so bad that I really want to die when they hit. I can't have anyone around me, no lights, or sounds what so ever. I read earlier where one guy had relief by drinking water every 1/2 hour......and I already started that. Thanks for listening......I know only those that have these damn CHs knows what it's truly like.