Posted by Rebecca T (63.225.133.182) on May 10, 2000 at 00:46:08:
I'm back seaching with more questions. I think I'm getting the idea that my doc doesn't really know what she's doing as much as she wants me to think she does. Here's the deal: I'm in the middle of my worst cluster ever and so far she has underdosed me on steriods (put me on a one week course at the very start of episode which stopped the HA's for 10 days, should have done a 2 week course), pushed imatrex like crazy, even trying to get me to use it as a perventative thing even though imatrex has never worked for me, now she has upped my dose of verapamil to 240 because I insisted on it and I'm reading that others are getting results with twice that amount, which she won't even consider, she also refuses to consider putting me on sansert and lithium, a dangerous but effective combo for me esp since this episode will prob be done in 6 weeks. Now she wants to hospitalize me and pump my body full of whatever to try and break the episode. I'm so desperate I might abandon the kids and go along just to get some relief. Now she's trying to get me to take some strong sleeping pill to see if I sleep through my nighttime attacks. I just can't bring myself to do it - the last thing I need on top off everything is some sort of addiction to go with the pain! Plus, the percodan she gave me for pain isn't working at all anymore (I've only taken 25 pills over the last 3 weeks, so it's not like I'm abusing it) and I'm trying to convince her to give me something else, but she has to talk w/some of her collegues first to see if there are better alternatives or some such thing! The one good thing is she gave me a prescription for endomar which I have found I can only take for 2 headaches a day and it makes me vomit, but if I take it before I'm even sure I'm getting an attack, the attack doesn't really come, so that's better than nothing. Maybe I'm being impatient, but my life is totally on hold right now and I'm in pain more hours of the day than I'm not. I'm not sure if I should play the good, informed patient, call her with a list of demands and refuse to leave her alone until I get what I want or find someone else and go through all this again! One last thing before I leave my petty tirade, does anyone out there use the nasal spray migranol? She's given me a prescription for migranol, but I don't know anything about it and am hesitant to waste my money on another prescription if it's just a bunch of bull. Oh well, unless I off myself (not going to happen) at least these things can't kill me, although in the middle of a bad attack, I wonder sometimes! Peace!