Posted by Bennie Sue (63.11.65.202) on March 20, 2000 at 12:51:13:
In Reply to: Reservations... posted by Bobbie P. on March 20, 2000 at 12:29:41:
Hi! I don't think I understand what you mean. We don't plan to give the drug companies any money; we just want them to know how much it would mean to us to have affordable medication. Probably they don't care right now, but if they realized how badly we need help they might work on something exclusively for US.
I would like to see a brochure about CH in my neurologist's office. But I know OUCH cannot afford to distribute such brochures all over the world. If we had a specific medication to sponsor us, we could get a lot more publicity for ourselves and our cause.