Posted by Bob Wold (205.188.197.161) on February 13, 2000 at 19:28:42:
For those (most of you) that don't know me, my name is Bob Wold and I'm a 20 year Cluster sufferer that's been residing over at alt.support.headaches.migraine for about 4 years now. I just finished rewriting the FAQ for the newsgroup. It has a lot of information that you may be interested in.( about 81 Kb worth) You can find it at http://www.meldrum.demon.co.uk/migraine
or stop by the newsgroup and look at it there. If you would rather write to me, I'll send you a copy that is in one piece rather than one that is broken down into 4 parts which was done so that it could be posted. Also, and very important, please, if you know of anyone or anywhere that an old version of the ASHM CLUSTER FAQ exists, please write to me so that I can get a new copy out to replace it. It hadn't been reworked since 1996.
BTW, for those that remember me, I couldn't have the Gamma Knife treatment because my clusters switch sides *during* cycles...yes I'm a rare case. I just had a histamine treatment and that did break my cycle.
Thanks for your help. If you do take the time to read the FAQ, please let me know what you think, especially if you see anything that you may have questions about. That is what it's supposed to do. Answer questions, not leave anyone with more questions. Thanks. Bob