Posted by Jonathan on November 11, 1998 at 12:00:35:
I just want to say thanks to everyone for being here, and most of all to the creator of this website. I don't know what I would have done without it. I've been through some incredibly tough times recently and am only just beginning to get my head and life together again. I'm not out of the woods yet, but I have handled today better than most, I'm feeling in control again. I haven't had a headache for 5 days now. I started a new treatment of Epilim (sodium volporoate) and it appear to be working. I'm beginning rebuild my life and my friendships again. I've lost a few things but I think I may have gained some also. It's too soon to say if this feeling of control will last. I get the impression that I know and understand myself and my attacks better than I did before. It's almost as if I have just been through a pain barrier.. I just got sick of being sick. I'm still a little peeved with my neurologist, but I'm getting over that too. I guess all I'm trying to say is, I'm feeling better today, I'm putting one foot in front of the other and I'm improving. I would like to thank those who have shown such concern, especially Maggie, Yuko and Jerry (and others) who kept emailing me and keeping me from giving up completely. I want to thank all of you who have posted here too, not just those who have replied to my posts but also those people who are expressing their own anger towards this very unfair condition. Reading your posts has given me something else to think about, it's helped me realise that we are all sufferers of this, even people who don't get the CH themselves suffer while watching their friends and/or loved ones go through the pain of an attack. It has always been my goal to find a way to stop the suffering even when I could only think of my own. Once I'm sure I'm back on my feet I will (I've always been determined to) get a help group set-up in the UK. In a strange way I feel glad I hit the bottom, I think it has given me something solid to bounce back from.
Thank you all
I'll drink a pint of water to you all.. Here's to peace and better days with no more CH's.