Posted by gary g (208.133.221.195) on August 24, 1999 at 00:42:03:
In Reply to: Hello. I'm back as are my clusters. Had 10 CH last night! posted by Michael (I'm back) on August 22, 1999 at 18:31:11:
oxygen !!!!
absolutely
8-10 liters/minute; start at very first twinge;stay on thru attack plus 3-5 minutes (for me a TOTAL of 12-30 minutes,
use a NONrebreather valved bag mask or other method to breath ONLY the pure 02
when they're real heavy, I sit up all night reading mystery & adventure books, so I can get on the 02 immediately - - by doing this it seems I interrupt the overall cycle and the pattern slows down a bit
also, I seem to be able to sleep at least 3-4 hours if I wait until 4 or 5 AM to go to bed - that avoids the HORRIBLE 90 minutes & up with an attack underway merry-go-round, and actually provides a little rest which is VERY important
another thing - I just give up altogether on even thinking about any kind of activity schedule, much less trying to keep one - the strain and fatique of trying to "be normal" in spite of the attacks makes things worse IN MY OPINION
I believe that one of the keys is to try to keep the cluster from getting out-of-control, for me the SOBs seem to feed on themselves - -
good luck