Posted by Derek (204.210.20.12) on July 18, 1999 at 19:10:20:
I have learned something valuable about my CH's and triggers today I would like to share with all who care. It seems that this web site has become a possible trigger, (I'm half joking, but sometimes think its true.) and that sure is a shame. I will never forget my experience here, the last 2 or 3 weeks or whatever its been, unfortunately the couple of good things and few nice, caring, people...who are actually here to help support and be supported have been largely overshadowed by the many unkind, non-caring, self-centered, non-compassionate, and just plain rude people who have overtaken this site and think they own it, or because they were here before me are better or because they think they know so much more of CH's than others etc. etc. etc. This is all really too bad and as you (whoever YOU is) plan conventions and organizations such as OUCH, you ought to think about how to treat people, and by treat I am not talking medical treatment here, I am just talking plain old common sense respect. You are fooling yourselves if you think that you are going to have a great organization or convention or any influence on CH's talking to people like goes on here. No Dr. in the world will give you respect or concern if you continue to act like this. It is a shame to think that some have referred Dr.'s to this site because I fear that any professional reading here will have a hard time listening to your OUCH later. Three weeks ago, I thought that a convention and OUCH souded great, today even as a fellow CH, there is no way I would associate my name with a group of people who act like so many who post here. Of course some here will say, just based on this post of mine, that I am not a CH sufferer!! To those I can only laugh, in between breaths of O2 and predisone pills. With that said, I will now only respond to post by e-mail and only those that pertain to CH info. I posted earlier that this could be an outcome of the foolishness that was going on, and if it didnt stop, myself and others would resort to e-mail, thus many readers will lose the benefit of reading ideas etc. and this is exactely what has happened with myself and e-mails I have gotten from others who say they no longer post or will no longer post based on the actions and treatment from non caring individuals here. So if you post you might just get an encouraging word or note from me in e-mail form and any replys to me by e-mail are greatly appreciated...UNLESS you have nothing good to say, in fact if you have anything negative to say please do not send to me, I have been successfully avoiding many CH triggers during this current cycle and wish to avoid another. Thanks to all who have given support and ideas to me. See ya in e-mail.
-one last post, Derek