Posted by David Chalfant (208.30.14.115) on July 03, 1999 at 20:22:45:
In Reply to: new to group posted by Amanda Best on July 02, 1999 at 18:01:30:
Amanda, welcomw to the site. I am glad you found us also. I am sorry you have been through so much getting off of predinsone. I am new to this site also. It has given me direction and hope. You will become friends with many here and they will share their experience and knowlege. You will get support and unconditional love and care when others don't know the hell we go through. You will find possible treatments and how to find a doctor with knowledge of treatment of Cluster Headaches.In my opinion, your Doctor may lack the knowledge of treatment. Many of us had a hard row to hoe before we found a doctor who could help. I am glad you posted. I love it when some one with CHs finds us; hopefully we can help others to make the hoeing easier
Sincerely, David C