Posted by Amanda Best (216.164.7.103) on July 02, 1999 at 18:01:30:
I have been reading the board for a week now and I thought i'd finally post. You have a good group here and I hope I can become part of the family.
I am 29 years old and i suffer with cluster ha's. I am going into my 4th month of a cycle. My last clycle was 2 years ago and I am afraid I am turning chronic.
I was getting 10-15 ha's daily but am now on Depakote and it has cut down the frequency to 6-8.
I do not leave the house because the ha's scare me so much.I have completly lost my life.
I am just recovering from decadron(prednisone)
Not only did my whole face swell up like a balloon i lost the use of my legs. My Dr. never warned me of the side effects. I couldn't even use my right hand to pull my hair when the headaches came!
Anyway, I am finally walking again but am still in extreme pain all over my body. If the ha's were gone I wouldnt care so much.
I at least used to feel good between ha's now I feel bad all the time.
I wont ramble any more, I am glad I found you guys, no one should be alone with this disorder.
praying for peace,
Amanda