Posted by Narcosleepy (63.229.43.103) on January 31, 2002 at 19:30:04:
I visited here in the summer of 2001, when I was in cycle seeking advice. Unfortunatley, it was towards the end of my cycle, and being a hopefull 18 year old, I stopped coming here because I thought "I was cured!"
Now in college, the beast has re-emerged, although not at excruciating levels (yet). It is incredibly hard for me, because for one, no one has ever heard of cluster headaches. Second, I have been diagnosed with narcolepsy. For people to understand that I have such rare "head problems" by themselves is hard enough, but people don't believe me when I tell them I have both. This results in a serious lack of sympathy, and even annoyance on their part (when I do not have a headache and screaming in front of them).
I am managing to get through school with decent grades, but I fear life will get worse in the weeks to come. There really is no place that I can do "the dance" by myself. But what I fear most is the absolutley terrible pain that is to come.
I vow to stay on this site for now on, and choose to accept that this is a condition with no end in sight. I look forward to meeting all of you, and I wish you luck in your battle with the beast.