Posted by John (205.188.192.27) on January 23, 2002 at 13:35:04:
I am new to the board, My clusters only pop up for about 3 months every 2-3 years or so. I haven't used medication for them in about 10 years, but I'm going back to the doctor soon cause this series is real bad. Mine usually start from 30min to a couple hours after I lay down. I get right up, get dressed, get out in the cold and start running (you have to go fast enough to get breathing hard). I stop at the deli about a 1/4 mile away, grab a hot coffee and drink it down with 3 advil. I keep walking fast and usually get relief in about another 10 minutes. This has been working well for me for years. It gets real old when the attacks get over 2-3 a day though. None of the preventive medications I have been on worked at all. verimipil, indocin, inderal, prednisone. The only abortive medication That worked good for me 5-10 min was DHE nasal spray worked about 80% of the time. I see from the board, there are a number of new meds I haven't tried. thanks to all for the new info, I wish all the best.