Posted by Deb (206.45.78.95) on January 09, 2002 at 01:17:47:
In Reply to: Went to the doc today and may have found hope. posted by Robert on January 08, 2002 at 18:59:05:
does anyone know why Terrell Davis was administered Zomig? If he has CH maybe he'd be a good candidate for a "spokesmodel", maybe he'd be willing to help us spread the word? Just a thought.
And while I'm on this train of thought, we really need to change the name of CH, I know we went through this a while back, but seriously, as most of you know, having this thing called a headache is not helpful in getting others to understand what this is all about, everyone gets headaches, headaches are not a neurological disorder, this is. If we ever hope to be taken seriously by employers, insurance companies etc., the name has to be changed. Maybe someone with a link to Dr. Goadsby can plant the seed, I think Dr.'s probably get off on being able to name something.
Again, just a thought.
Cheers
Deb