Posted by Frank (64.213.201.1) on December 04, 2001 at 16:13:16:
In Reply to: UCLA: anyone try the treatment there? posted by Paul on December 04, 2001 at 15:30:35:
I haven't been to UCLA for CH, but I did find the link below. Best thing would be to call them and ask what they can do for c-l-u-s-t-e-r headaches. If they know what a CH is, you're 50% there.
But I do want to tell you my bad experience with them. My wife has chronic insomnia, the result of a brain injury cause by an auto crash. She went UCLA's Neuro. Dept. in Westwood, CA but there seemed to be a very poor line of communication between her doctor, UCLA, and our insurance company. It seemed nobody (her doctor and our insurance included) knew who was responsble for what, and so it took nearly four months to get in there. When she did get in she went through neuro-psychological and neuro-physiological testing, was referred to the sleep disorders program, went though all of their testing,... and they concluded that she has insomnia caused by a brain injury, it likely will not improve, and we don't know of any (safe) treatment for it. Doh!!!
I hope your experience is a better one.