Posted by eliz (65.31.190.231) on November 28, 2001 at 18:50:18:
In Reply to: Just when I thought we had a good thing going..... posted by KarenT on November 28, 2001 at 18:42:41:
It really sucks when we find something that works, then it's taken away from us. I wish you luck in finding an internist/GP who's willing to listen. I know how very lucky I am to have found a knowledgable neurologist who appreciates the fact that I'm researching CH/CPH and suggesting possible treatments; we'll probably never know exactly what caused that huge brain-blip I had (me thinks it was the verapamil in combination with other med)...I know that it was a fluke, a one-in-a-billion, a non-preventable problem. Can you guys tell that I like my neuro? LOL hugs to all, elizabeth (and pfdan to all too....)