Posted by Rave (216.77.215.188) on November 27, 2001 at 21:31:23:
I suffered Cluster Headaches for seventeen years.I haven't had an attack in four years now.I went to a million doctors and was a guinea pig for most.Fiorinal #3 and many other painkillers was my only survival.I didn't like talking to any one about it, for no one knew what I was really going through.I write this, for after reading the home page I now know I was not alone.Many CAT scans and many Neurologist in the early eighties.Worse, the word Migraine became popular and yet non even came close to what I was referring to (every one said "Oh yea, I suffer Migraines too.")and surviving through.I finished with Immutrex and Fiorinal #3.Why they are gone, I am not sure.I am upset that half my life was undescribable ruined.I write this for my own personal therapy and just maybe I might be able to give advice to some one who suffers what I did.I will end with my own quote " I wouldn't wish this on my worst enemy."I don't know if anything I tell you will help.Most of my so called surviving was based on a lot of trial and error, all failed.I am sure they(so called Doctors) know much more now.If I can help or answer any question that might lead to even one attack being less painful, then I am here.Questions?Rave.