Posted by Calley on November 16, 2001 at 01:24:40:
This is the same message I posted in the guest book...Wow! I didn't realize that there were so many people with CHs. My husband (age 31) has had them for approximately 12-13 years now. I have been with him the entire time and know the agony, frustration, helpless feeling of a CH spouse/support person. I just didn't realize that I was alone. The quote from the woman whose husband suffers from CH on the home page could have been written by me. It is even more difficult now that we have two small children that have to be taken care of and don't like to be awakened in the middle of the night to go to the ER. My husband doesn't even wake me up anymore, unless he needs to go to the ER, because there is nothing I can do. Imitrix spray is not working this cluster. The pills aren't helping either (Darvoset). We've been to the ER/urgent care twice in less than a week because the headaches just won't go away. It stays intense for hours. The Demerol injection is the only thing that has helped this time, which causes my husband to throw up for an hour and then finally pass out! We can't get into the neurologist until next week. The Imitrix injectors are not covered by the insurance and even if we paid out of pocket ($150 apiece), I'm not convinced that they would work. The GP won't prescribe anything else because it is "out of his league". Any suggestions, comments, advice would be welcome. I'm just about at the end of my rope. The only thing that I can look forward to is that we are 3 weeks into the cycle and therefore that much closer to the end, which has always come in the past. Thank you for this site and the information. It helps to know that someone understands...especially when the doctors don't (or at least don't seem to care).