Posted by DickR on November 08, 2001 at 14:53:03:
In Reply to: Need just a bit of advice...... posted by Glenda J. on November 08, 2001 at 13:28:16:
how many Doctors or anybody for that matter, really know about CH if they haven't experienced it. You are educated about your disease and IF you have a Doc that will listen to you and help stay with her.
So many times I see the comment "Well they are the Doctor and therefore know more" What a crock, only we know what works for us and that is only after a LOT of trial and error with plenty of luck. As you know, some of us never get any lasting relief.
Stay with what you know and with a Doc that will respect that knowledge. Good Luck!!!!