Posted by Elaine (E.T.) (24.253.156.103) on August 25, 2001 at 22:52:16:
My 12 yr old has clusters, but she is too young to treat the same way I am treated. It is worse for me to sit back and watch her suffer as badly as I do, and not be able to do too much for her. She has even gone into focal seizures from the pain for days on end, while in hospital. The doctors had never seen anything like it. Sad, but true. I know it is very rare for someone her age to get them, but to us it is a reality.