Posted by Trudy (152.163.197.52) on August 25, 2001 at 14:17:32:
Tried to double my dose of Indomethacin for 12 days during the "danger zone" of what we thought we were tracking as the most lethal times of the month that my ice picks were happening. The twelve days were bliss - no problems whatsoever..but I made the mistake of coming down cold turkey to my regular dosage of 25 mg. 3 x a day of my Indomethacin and I guess that was the WRONG way to do it...I've had 2-1/2 days of living hell. Been on the phone with my neurologist (bless her heart - she gives me her beeper number) and I'm now on a dose of prednisone for two weeks to see if that will knock me out of this latest flareup. I've doubled back up to the 50 mgs. 3 x a day of the Indomethacin and will have to slowly wean back down to my regular dose. I didn't know you couldn't go back down quickly - how did I miss that?
I feel a little better today - after 3 doses of the prednisone, but am still getting hit every few hours with stabs. Plus, we are now trying Topamax to see if that'll be the extra bonus I'll need besides the Indomethacin..which seems to be losing a little of it's punch. I think I'm needing a little more than the 25 mgs. 3 x a day - and my stomach is NOT wanting to handle 50 mgs. 3 x a day - everyday as a preventative.
Any suggestions? This juggling of medicines is no fun...I feel like a mouse in a glass cage and my poor family is certainly starting to pay - especially the little ones - I feel like such a failure - they are trying so hard to understand - but they ARE kids and deserve so much more..sorry - I'm so down today.