Posted by Margi (161.184.81.207) on July 24, 2001 at 13:24:37:
In Reply to: need tips on dealing with husbands pain posted by keri on July 24, 2001 at 13:11:31:
I'm a supporter too. It's not an easy job watching someone you love go through this hell, is it? You feel so totally helpless/useless/frustrated. But there ARE things you can do, take heart.
First, ask him when he is not getting attacked what he wants you to do. Don't ask him while he's in pain -- he needs to be able to concentrate. Ask him if he'd like you to bring him ice, pills, oxygen, whatever.
That's what has worked for my husband - ice, oxygen (we use welder's oxygen), dramamine or gravol to help him sleep through the night, OR benadryl will sometimes help him sleep (but never benadryl AND dramamine, ok?).
We use those gel-filled ice packs that never really quite freeze. Put them in a cloth gift back and he lays it on the back of his neck - it helps him to stay calm and he says it brings the pain down to an easier level.
His biggest success has been with the shroom therapy, but that's a morale choice that is completely you and your husband's to make.
Please know that neither of you are alone anymore - there are sufferers and supporters here who feel both your pain.
Please also know that you can email me directly anytime if you need a shoulder. Just press my name in blue at the top of this message.
Hang in there, Keri. We're all family here.
Hugs
Margi