your neurologist is mistaken


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Posted by pinksharkmark (64.32.116.31) on July 07, 2001 at 15:40:12:

In Reply to: Could it Be Clusters in my Son? posted by Melodi on July 07, 2001 at 14:53:38:

While it is certainly rare for one so young to develop cluster headaches, it is not unheard of. If your neurologist is rejecting a diagnosis of CH based SOLELY on the age of your son, then he needs to update himself on the facts of this disease.

As for oxygen being "impractical"... well... I guess it would be kind of difficult to lug a tank of O2 off to school in a backpack. I do agree with him that the attacks are too short (60 minutes) to fit the classic migraine pattern.

As for the out of town trip... it may be possible that there is some local pollutant that acts as an aggravating factor for your son... something that tends to "trigger" an attack when he is "in cycle". Hard to say for sure.

Sorry to say that your neuro is being far too close-minded about this. I hope there is another neuro within reasonable driving distance whom you can consult for a second opinion.

I really hope your son doesn't have CH. But from what you have described, it surely sounds like a very strong possibility.

pinky




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