Posted by susieQtwin (209.142.171.232) on July 05, 2001 at 00:59:59:
In Reply to: Striking while the iron's hot. posted by Ted on July 04, 2001 at 21:17:09:
I came here a few months back when my doctor misdiagnosed me with CH. It became pretty clear that I do not have CH. It also became very clear that the pain you all experience is something I could never fathom and hope to God I never do.
I am in awe of your courage and determination to "kill the beast". I have tried to educate myself on the difference between M's and CH's and moniter my M word discussion board for possible misdiagnosed clusterheads. I have sent two your way - telling them to please take the quiz first. I want to help - some of you may say "this is not your battle" but I would say that your soldiers are mighty but few. I feel like I understand your frustration, when I see a M word commercial, I don't think of myself, I think of you all and how you have absolutley no support out here. Kinda like Whorton hears a Who. We are here!!!
I would be happy, with DJ's permission of course, to watch the M word boards. I would take a couple of weeks to learn as much as I can about CH before opening my uneducated mouth!!
Sorry this is long but your convention fired me up as well!!
I have been a CH supporter for months and have grown fond of you - jonny, you grew on me!!LOL
Please, DJ email me if you think this might help, if not then just ignore the post okay?
fondly,susieQ