Posted by Van (66.56.183.0) on July 02, 2001 at 14:27:37:
The following link takes you to a site that lists Centers who are doing research. Yes, most of them are for migraines, BUT, if we start calling and requesting research on clusters, then perhaps we can get more research done.
Some of the sites mention clusters.
Would someone in each state call the Center nearest you, and ask specifically about cluster research. Send the info back to me and I'll tally up what I find.
http://www.centerwatch.com/patient/studies/CAT100.html
Now--do not give me each and every detail, just the basics:
a) Name of Center/City State, Ph #/ Contact name
b) Are they doing cluster & migraine research or only migraine.
c) Ask that they send you a packet of info concerning clusters--tell us what they send--post it on the board
d) Overall, was it a worthwhile call?
I'll give the info emailed to me to OUCH--they'll decide what to do with it.