Posted by stevevr (65.113.10.82) on June 22, 2001 at 20:30:17:
In Reply to: Doctors are soooo slow!! Update on my 4son posted by Carla on June 22, 2001 at 11:20:08:
for us to be motivated to action it is children with ch. This is a pain which has by the medical community's own admission produced more suicides than any other "headache". We are here because we share this pain ... alone, it is miserably intense - together we find that we can manage.
Kids .... they are left to the mercy of their parent's persistance and a doctor's awareness. Our own Dr. Goadsby recognizes that some children have ch. Who cares how "rare" this condition is in children - they are entitled - correct that - we are obligated to find the best information regarding children with ch available for them and their parents. Please ch moms ... grab the email addresses off Carla's post and share your success and failures with each other now and for the long haul - and with us.
If there are any medical minds out there lurking, please consider the cause! Any out there that search the web???? Do you have contacts that may help?? Your nuero? Ask the questions! Share the info - many of us go to doctors - nueros - clinics - ask some questions for the ch children. Forward that info to this site and to o.u.c.h.
Here is a book reference provided by Bob J from the Liaison committee of OUCH.
HEADACHE IN CHILDREN AND ADOLESCENTS. Ed by Paul Winner and A. David Rothner. Hamilton, Ontario: BC Decker, Inc.; 2001, $69.95.
Check with your local library to see if they will buy it for your community.
stevevr