Posted by deb e (216.46.198.65) on May 07, 2001 at 06:07:28:
In Reply to: Not diagnosed yet but O2 is working if we get a jump start with O2 posted by Norris Buchmeyer on May 07, 2001 at 01:56:22:
during an attack, she is not on a preventative and usually this happens when she is out of meds. getting him to a neuro that knows CH would be the best thing for all of you. having the HA's myself i can handle but i'm not sure i would deal well with the pain of a child having these monsterous villians. ped. neuro pronto and keep looking till' you are satisfied and he is on a treatment program.
prayers and thoughts are with you, check out links here, read, search... and QUESTION, QUESTION, QUESTION everything till' you get answers you can live with. good luck, take care ..all of you.