Posted by katrina (63.237.141.5) on May 01, 2001 at 13:19:54:
There were so many good things that I had heard from you folks when I posted before, and as I had said then my husband required surgery. (I should include that this was nothing suggested to correct CH) The surgery occured without any problems short of the misery one feels after having jaw cut and teeth removed, but the fear of clusters occuring when that was happening was unfounded. There have been a few since then, but nothing that was so bad. Wondered if the anesthesia may have broke the cycle? Anyway, clusters have been at least mild. Just prior to surgery when they were many times daily, he increased the lithium by 300 mg. and his topamax by 25 mg. This has seemed to help at least.
I have read some of the posts here lately, and there is only one thing that I would like to say, and that is when there were responds to my post, and the feeling from johnny and nancyc that they would hunt me down if I disappeared, it took a big load off of my heart and mind. I have still not been able to contact you email nancyc, but the magnitude of challenges I face as a supporter would be lightened by your insight. Most of my available time on line occurs at 5-6am, but I am most certianly interested in talking with you, and getting to know all of you.
Thanks again, and may your days and nights be pain-free