Posted by Cheryl (12.36.128.30) on April 24, 2001 at 10:02:09:
Dave, Kimberly, Teviah, Tory & Gary and the others,
I am a supporter first off and I want you all to know even though Clusterheadaches are in your life that does not mean that your life is over. Your life may sometimes be controlled by the demon but... Here is how Donald and I lived for a looong while.
When I was pregnant I realized that the headaches were prominent in our life. I had gone into labor in the evening and was just praying that Donald's headaches would hold off until the baby arrived or even better till we got home. When Caleb was born the best thing in my life (other than Donald) I was sooo happy. Of course now days you keep the baby in the room with you at all times as we did. I had to stay in for a week cause Caleb was tiny and he couldn't get a hold on his sugar level. Well the demon came I remember Donald I felt so bad for him, he could not enjoy the special time that we would never get back, the newness of being parents was riddled with the demon. He sat in the bathroom of the hospital room rocking, cussing the demon. As time went on the demon became constant in our lives. I was constantly taking Donald to the ER and Caleb and I sitting there waiting and Donald fussing the whole time cause we had to go through this. It was taking a toll. Visit after Visit, Doctor after Docter and Bill after Bill.
He was depressed and hurting and I was all alone (I thought)I got on the computer and started looking for anything. I found CH.com. But in reality I found sooo much more. I found a group of friends that I will cherish forever. Friends are the ones who are honest, caring and there when you need them. The Honesty is kinda tough taking when you realize that you have something that their is no cure for. But, just know that ALL of us are here for you. Over the last 4 years of Chronic time for Donald has been rough to say the least but believe it or not I have learn about alternative things and stuff that you can't imagine (ask Donald about the Bleu Cheese and Vinegar!!! Yuck)But believe it or not the headaches have calmed down a bit. He still has them everyday but he is living life and enjoying Caleb and starting to realize that Life is still there. I hope that each of you can become pain free but just know that you are welcome to our family.
Love (I say this to everyone hope you don't mind)
Cheryl