Posted by Thomas/Munich (195.27.213.20) on April 16, 2001 at 13:32:54:
In Reply to: New treatment? posted by Matt on April 16, 2001 at 08:19:47:
Hi Matt,
whether invasively or not invasively - distroying
afferent = sensitive nerves a l w a y s means
b o t h a loss of pain (if you have been a lucky pacient...) a n d a loss of sensitivity in the concerned area.
For further informations look under:
Trigeminal Rhizotomy
[ Cluster Headaches Messages ]
Posted by Barbara D (205.188.196.22) on January 09, 2000 at 11:46:49:
In Reply to: Nerve Operations for Cluster H/A posted by Capt. Wm. Roberson on January 09, 2000 at 08:24:23:
Capt.
I had a Stereotactic Radiofrequency Trigeminal Rhizotomy last March. This is where they microwave the trigeminal nerve, killing it off. The odds were 80/20 going in, but I was chronic and had been for 2 years (2-7 HAs a day for 2 years) and NOTHING had worked to relieve the HAs, so my doctor said it was my only option.
It worked for a little while, then the HAs came back. Recently (about 5 months ago) I went on Topamax and it WORKED. I'm been virtually HA free since going on this "wonder" drug. It has NOT worked for about 50% of the people I know who have gone on it, but for me it's been a lifesaver.
I wish you the best of luck. If I can help feel free to e-mail me.
Hugs BD
or look at the posting of Roxanne Wisniewski of July 12, 1998
or at the Medical Sites:
www.mayfieldclinic.com
www.tna-support.org
ATB ! Thomas