Posted by Ed (152.163.204.203) on April 15, 2001 at 12:05:32:
What can we do as a group to bring attention to our unusual problem. We need there to be more awareness of these headaches in the medical field as many ER and general doctors don't understand the pain and problem.(when in a spell we don't have 45 min in an ER to fill out paperwork, I almost choked a nurse in NJ because I was 3 ft from an o2 tank that I was not allowed to use). Also I think we need to drop the headache part of our problem and come-up with a new term for our condition. These are as like a regular headache as MUDVAYNE is to pop music. Maybe a more intimidating term like suicide cluster. That's it I'll use that from now on.