Posted by Barbara D. on April 07, 1999 at 10:40:39:
In Reply to: a few questions posted by lost1 on April 07, 1999 at 08:39:39:
Lost 1,
We've all been there. Bad doc and all. FIND YOURSELF ANOTHER DOCTOR, preferably a neuro who knows something about CH. You'll probably have to go through several before you find one to listen. Interview them: ask how many clusters they've treated (or if they know what a cluster is?), how they treat them. Keep looking till you find one who will listen - even if he/she's not in your HMO.
Narcs never worked on me, but Cafagot and DHE did. We've all taken too much (from the manuf. recommended dosage), but when this pain hits, you do what you gotta do.
Also, you might want to consult a pain management specialist. Go back on this board and read what has worked for different clusterheads. Try bob's water treatment, exercise, Feverfew, accupuncture, etc. There are a lot of things here to help that don't include a gun.
We all wish you the best and we're here if you need us.
Hugs BD