Posted by Angel (63.42.252.128) on April 12, 2001 at 15:33:08:
Like I stated in my earlier post, I am here always lurking and learning more and more each day. I jus wish I could have found this board before now. I will be more than happy to help where I can, but Im not sure at this stage im knowledgable enough with these "demons"....At this point im at a loss and dealing with the loss of my "life"...as hubby was definately that...he was my life. And in all honesty, he will always be. Im hoping and praying that one day he will beat this monster as I hope and pray for all other CH sufferers, but would also like to let the sufferers know, the ones who love you the most...believe it or not feel your pain...not in our heads but in our hearts...which I promise you, can be just as painful.
I guess my best advice would be, follow your dr's treatment, work with them and let them know what and does not work for you...but PLEASE do not medicate yourselves with "outside" help!! Sometimes the drugs used for these clusters mixed with "outside" type drugs will cause more harm in the long run.
I have noticed alot of people on here offering "drugs" of different types to all the CH sufferers, but I PROMISE YOU....you may be getting into something even more difficult to deal with along with the clusters! DRUGS ARE DEMONS TOO!! PLEASE....Lets all try to find the "cure" for clusters, not just ways to put it aside for awhile, because I promise you when you look outside for the wrong sources you will have more than one demon to deal with.
Ive seen the pain, Ive felt the pain (in my heart) and I truly do know what CH can do to ones life, to the CH sufferer and to the ones that love you the most.
Im not trying to take away the pain that CH sufferers go through, but just trying to let you know we as supporters are human too...and we really do feel your pain....jus in a different place.
PLease take care all, sufferers and supporters alike, we really are in the same "boat" so to speak.....