Posted by Barbara D. on April 05, 1999 at 15:46:29:
In Reply to: another night from hell posted by tami on April 04, 1999 at 23:34:41:
Tami,
The DHE will sometimes break a cluster (the need to start IV and if you need more you can inject them at home IM). Imitrex injections will sometimes stop one headache, but NOT the cluster. Some people take these injections several times a day.
Predisome treatments are working for some CHs (my neuro swears by them because they work for him - didn't for me). But if you take Predisome you won't have to worry about loosing weight. The door knob even looked good (with a little salt and pepper) when I was on it.
Ergocaf is good for some people. It will let you act like a "normal" person till the next one hits.
Don't ever worry about dumping here. That's what this site is about. We all feel the same way and are trying to help each other since most of our doctors don't know a damn thing about these demons. Find yourself a neuro who WILL give you something to KEEP the pain away as much as possible. Don't always trust the first one you talk to. I went through about 15 before I found one who actually KNEW what I was going through. It's not easy, but there are some out there.
Tell your husband to read this board and if he has questions, ASK. We'll all be glad to answer him. So far we haven't found a COMMON cause for these things. We're looking, but right now it appears that each individual has different triggers.
Hang in there. We're all here to help (you and your husband). Tell him to give us a chance.
Hugs BD