Posted by shelly (63.11.185.183) on March 29, 2001 at 22:47:20:
My son is coming up on a year with these hd's. Why did diflucan help him? Why did it not last? How can a three year old deal with this pain? How can I help him understand, when I don't. What about his older sister that is still too young to deal with what she watches ever day. One third of his life has now been consumed by clusters; have they changed him? Will they dictate who he becomes? How can he be so normal when he's not having an attack? I don't feel like the answers are hiding, they are there in front of me. I go through all of these questions ever day....and I worry that I won't ever see it. The answer. I am so sad today, because I've decided to look for safe pain relief istead of a cure. I thought that being a mom of a sufferer might give me an edge. Some kind of super intuitive sence to help guide me to my sons cure. I was wrong, and that has slowly made me depressed. This site is truely amazing, and I'm so thankful that I found it almost one year ago. Shelly