Posted by nancyc (206.74.142.9) on March 26, 2001 at 10:12:02:
Thanks to all below that posted on their first visit to the Doctor for clusters. I have been printing all the responses to put in my files for OUCH Liason committee. Try to remember emotionally how you felt. I know my emotional pain was just as bad as my physical. When we put this packet together to help educate the Doctors out there, we want them to know how we "feel" as cluster sufferers/ how it affects our whole life. We can explain our pain on a scale of 1 to 10, so let's explain our emotional pain to them too. Thanks for all of your help. I really feel this is for a great cause. I will probably be asking more questions for research so jump in there and help OUCH out. THANKS! smile, nancyc