Posted by Margi (161.184.81.207) on February 15, 2001 at 13:47:28:
In Reply to: no problem margi.. posted by jacque on February 15, 2001 at 13:39:59:
it's my husband who's the sufferer. I'm also a mom of a teenager.
It just scares me that Daniel is going away alone - I guess that's really a mom thing, right?
I really don't know what else to suggest to you - other than just not to give up. You are Daniel's best defender right now and you need to keep fighting for him. I'd try and call as many neuros as you can until you find one who has experience with clusters. Print out everything you can from the website and keep digging until you find the answers you need.
Hang in there.
Margi