Posted by Margi (161.184.81.207) on February 13, 2001 at 11:48:51:
In Reply to: please read the theposting on Horners syndrome-cluster its about half way down the page thats it says migrane cephalgia of the Hortons syndrome posted by pam on February 13, 2001 at 05:04:48:
My husband, Mike, has been an episodic sufferer for 23 years now. I know how hard it is to watch this torture and my heart goes out to you.
If you dad does have CH there are some things you can try to help him relieve the pain.
Does he use ice? We use those gel-filled packs that never quite freeze and Mike puts it directly on the pain. He also uses Oxygen to abort an attack. He hasn't had much luck with any of the traditional meds out there but he has aborted two cycles using the water treatment. This is drinking a glass of water every half hour while he's awake and then another glass when he wakes up in the night.
To prevent the middle of the night attacks, he has used Gravol (Dramamine in the States) - it causes sleep as a side effect, but doesn't let him get into the REM phase which is where the attacks hit. Benadryl will also produce REMless sleep and it can help with the nasal congestion too.
For the last two cycles, Mike has tried the "shroom treatment" and has experienced much success. He is currently entering Month 14 of remission, his longest yet.
Pam, please feel free to email me directly at moxie_miss@hotmail.com if you need a shoulder or just to vent.
Best of luck to you and your dad and don't forget to read all the buttons on the left to get more info. Take the cluster quiz, and read the cluster traits to see if what your dad is experiencing is clusters.
WWW/psilo
Margi