Posted by Mario Treglia (202.210.146.29) on January 31, 2001 at 02:21:58:
Hello,
I'm Mario, 38 years old, married, living in Japan for 16 years and
suffering from this horrible disorder for 3 years and a half.
I came across your site through a cyber friend of mine who gave me the
URL and told me to take a look at it.
It is amazing, if I can use this word, how most, if not all of the
messages I read on your main page, seemed as if I was the one who
wrote it.
We are not really alone but in a way during the moments of
excruciating pain like early this morning we are completely, entirely
on our own with the help of our beloved ones or sometimes under the
care of some insensitive physicians with absolutely no feelings
whatsoever for the "trip to hell" you are going through.
This page is indeed a very good source of information, the best in my
opinion, and why not say, an almost obligatory stop for those who are
also understandably, badly in need of a few words of support from
those who truly care.
Help and support from someone living in all corners of this planet,
who we never met, but who in moments of despair, can and most likely
will make a difference.
Well, along these lines of using the web for a good purpose I created
a Mailing list for Cluster Headache sufferers, a group for all of us
to interact and try to make the fight against this monster more bearable.
The address is: http://groups.yahoo.com/group/cluster_headache
everybody is welcome to participate, to support, to exchange views and information.
The group is free and open for all, and unmoderated, I do however
kindly ask the members not to post any message of commercial nature.
Also, on a final note, I would like to as the webmasters of this site
permission to point new comers to this blessed URL.
Thank you very much for your attention,
Mario Treglia
Tokyo/JAPAN
cluster_headache-owner@yahoogroups.com